A young girl fighting an incurable neurodegenerative disorder was given a choice by her parents. The next time she became seriously ill, she could choose to go to the hospital or to heaven.
According to a FOX News report, the family of 5-year-old Julianna Snow made her the offer when she was 4. They told her that in heaven she would be able to play, run and eat without a tube – things she has never been able to do as a result of her Charcot-Marie-Tooth disease.
In Julianna’s case, the CMT disease debilitated her arms and legs. It is now targeting certain nerves that control her breathing.
According to the report, doctors believe the next time Julianna becomes ill – even with something as minor as a cold – she may face dying from pneumonia.
Over the summer, Julianna’s mother, Michelle Moon, posted a conversation she had with her daughter about the choice. Here is some of what they said to each other.
Michelle Moon: You don’t want to go to the hospital, right, J?
Julianna: I don’t like NT [naso-tracheal suction, the thing she hated the most from the hospital].
Michelle Moon: I know. So if you get sick again, you want to stay home?
Julianna: I hate NT. I hate the hospital.
Michelle Moon: Right. So if you get sick again, you want to stay home. But you know that probably means you will go to heaven, right?
Michelle Moon: And it probably means that you will go to heaven by yourself, and Mommy will join you later.
Julianna: But I won’t be alone.
Michelle Moon: That’s right. You will not be alone.
Read the full posts online at TheMighty.com: http://themighty.com/2015/05/my-daughter-wants-to-choose-heaven-over-the-hospital/#/ixzz3pnYSoVE4
More on Julianna here: http://juliannayuri.com/